Helping Others Understand Central Pain Syndrome

Discussions about the illness, treatments, doctors, etc.

Helping Others Understand Central Pain Syndrome

Postby PattiG » Sun Oct 14, 2018 3:34 pm

Because I have Central Pain Syndrome, CPS secondary to a thalamic CM, and because CPS can be associated w/ thalamic or deep brain cavernous malformations, I wish to share this WONDERFUL, honest and patient-friendly article with you. And yes, I am thrilled my detailed story was included!
http://scmag-digi.strokeassociation.org ... io=22#pg24

Best wishes,
Patti
Multiple CMs throughout my brain. I have had 4 bleeds requiring surgery between 1987 and 2010. Locations of craniotomies have been: L. parietal, R. parietal, L. temporal and R. thalamus.
A Central Pain Syndrome Survivor's Perspective http://strokeconnection.strokeassociati ... rspective/
PattiG
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Re: Helping Others Understand Central Pain Syndrome

Postby Elizabeth » Wed Oct 17, 2018 1:48 am

Awesome article!!! Great work!!! As always, I'm sorry about your pain..you are amazing!!
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
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