Webinar: Surgical Management of CCM

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Webinar: Surgical Management of CCM

Postby Connie Lee » Mon Dec 18, 2017 8:53 pm

Angioma Alliance is beginning an expert webinar series. Our first webinar will be with Dr. Ed Smith, Director of Cerebrovascular Neurosurgery at Boston Children's Hospital. Dr. Smith will present on "Surgical Management of CCM." This topic is relevant to both pediatric and adult patients. He will review some cavernous angioma basics and then delve into new technologies used for removing hard-to-reach lesions.

We are trying to find out whether we will have enough people available to watch to have a live webinar. Our plan is to hold a live webinar on January 4th at 3:30 PM Eastern Time in the US (2:30 CT, 1:30 MT, 12:30 PT).

Please register as soon as possible at https://zoom.us/webinar/register/WN_siA_mU1PTVa9FChkoRWFtg and let us know if you can make it.

No matter what, we'll be recording the webinar for later viewing on our YouTube channel. Being there live allows you the opportunity to submit questions.
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
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Re: Webinar: Surgical Management of CCM

Postby Elizabeth » Wed Dec 27, 2017 1:54 am

Sounds very interesting. I'm not sure if I will be available or not...with both kids home from school...I'm never sure how that's going to work out. Is it better to register and maybe not make it, or wait to register? Thx!
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
Elizabeth
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Location: Los Angeles

Re: Webinar: Surgical Management of CCM

Postby Connie Lee » Thu Dec 28, 2017 6:22 pm

It would be better to register and not make it. You won't be able to get to the webinar without registering -
you need the link in your confirmation email. And, if you register, whether or not you attend, you'll get an email a few days later with a reminder that the webinar will be available for later viewing on YouTube. :-)
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
User avatar
Connie Lee
Founder, Angioma Alliance
 
Posts: 431
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

Re: Webinar: Surgical Management of CCM

Postby Elizabeth » Fri Dec 29, 2017 7:51 am

Great, thank you! I registered! :)
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
Elizabeth
Moderator
 
Posts: 1613
Joined: Mon Sep 27, 2010 6:49 pm
Location: Los Angeles

Re: Webinar: Surgical Management of CCM

Postby Connie Lee » Fri Jan 05, 2018 3:28 am

The video of the webinar is now available at https://youtu.be/L4fWHGWGE2I
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
User avatar
Connie Lee
Founder, Angioma Alliance
 
Posts: 431
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia


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