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Rare Disease Day - 2019

PostPosted: Wed Nov 21, 2018 7:56 pm
by PattiG
Here is an opportunity to share your story and raise awareness!
C'mon, you can do it. :)
https://www.rarediseaseday.org/tell-you ... vkvDA7bhqo

Well wishes,
Patti

Re: Rare Disease Day - 2019

PostPosted: Thu Dec 20, 2018 3:05 pm
by PattiG
While I realize central pain syndrome, CPS is the topic of my vid, I acquired CPS secondary to a thalamic CM bleed and surgery. I'm happy! the vid has been published on the RDD site! https://www.rarediseaseday.org/stories/6327
Whether it's a vid or a simple written story, this is an excellent opportunity to share your story and raise awareness, while letting others know they're not alone. Writing your story is also cathartic. :)
Happy story telling! :) https://www.rarediseaseday.org/tell-your-story

Best wishes,
Patti