I feel like throwing in the towel....

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I feel like throwing in the towel....

Postby DianaJoy » Mon Mar 04, 2013 10:10 pm

I'm not one to admit this...but, I'm feeling so down...I'm so overwhelmed that when the doctors ask me questions all I do is cry. This isn't me....I've survived so much, I always believe that if you set your mind on healing and stay positive you can beat anything.
However, I'm feeling exhausted, confused and defeated...
Anyone out there feeling this way? Crying...
Hope for healing!
Diana Joy
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Re: I feel like throwing in the towel....

Postby Libby » Tue Mar 05, 2013 2:42 am

Have you had a bleed recently, Diana? I am one of those overly optimistic people, but I have multiples, and certain bleeds have made me seriously anxious in the past. I went to a psychiatrist, and besides having someone to talk to, he also knew what drug would counteract the bleed. I would really check in to that with neurologist. When you just cry, what does he suggest. Do you tell him it is not the way you usually are?
multiple ccms in brain including thalamus and in brainstem. 9 bleeds . Large venous angioma and multiple large veins in the brain. Various lymphangiomas and hemangiomas in head.
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Re: I feel like throwing in the towel....

Postby vandy » Tue Mar 05, 2013 6:37 pm

If you re-post this message in the section of ....Living with Cavernous Angioma, you may see more responses.

I am sorry to read you are feeling down :cry: , glad your hiccups are better :P .

Stay positive and this too shall pass. We are thinking of you.

Henk :ugeek:
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Re: I feel like throwing in the towel....

Postby vandy » Thu Mar 21, 2013 3:49 pm

Hi DianaJoy,

How are you now?

Feeling more upbeat these days?

Let us know how you are doing. Thinking of you.

Henk :ugeek:
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Re: I feel like throwing in the towel....

Postby DianaJoy » Sun Apr 14, 2013 10:47 pm

Update:
I'm going in to University Colorado Hospital for another set of tests April 22....then if they are unable to find out which angioma is causing seizures then they will have to do the mapping by opening me up. I've been struggling with depression. :cry: Not sure where it's coming from....if it's with drawls from Phenobarbital (that I've been on for over 20 + years) or just the frustration of having seizures and not being able to have control. Either way the nightmare will come to end soon...hopefully. I contacted my health coach (from my insurance) and they are convinced the team here in Colorado is the best. Yet my husband and I have waited up to 2 hours just to get in for a appointment because she had personal problems. And I e-mailed her on Wednesday regarding my bladder problems...and I'm still waiting for a reply. So..what do I do? Been in bed all week with vomiting, nausea and severe back pain...Also, I've been having trouble with my bladder...urine retention so bad. It's caused me to be seen by several specialist and the conclusion is that it's neurological? What the heck??? It seems like everything I'm going through is being connected with my brain...like my chest pains...my lower back pain...now even my ability to pee is due to my brain...seriously!!! :x .
Anyways....I just wanted to keep you up so that you know I am thankful for your support. I so wish I didn't feel this way.....my husband keeps telling the doctors this just isn't me....but, I think he and I are talking to empty ears...Oh question my friends...Has anyone experienced massive twitching of a eye. It's getting so every time I try and lift things around the house or try to focus watching TV or reading my right eye starts twitching and my eye goes blurry? When I told the neurologist she said everyone has that...seriously...because it just started when I had the bleed in July??? :cry: :cry: :cry: Has anyone out there experienced success from the neurologists here in Denver???
Diana Joy
Hope for healing!
Diana Joy
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