New England get together?

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New England get together?

Postby KKMOMMA1 » Mon Feb 09, 2015 4:43 pm

Has there every been one? Are many people in this northeast area affected by CM's? Anyone with kids with CM's?
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Re: New England get together?

Postby Connie Lee » Tue Feb 10, 2015 2:07 am

KKMOMMA- are you on Facebook? We have a pretty active parent's group there: Angioma Alliance Parents and Children. It's a closed group so you need to ask to join.
Connie Lee
President and CEO, Angioma Alliance
On this journey since 2000, when my infant daughter was diagnosed.
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Re: New England get together?

Postby kdaniele203 » Sat Jun 13, 2015 7:43 pm

I'm in the north east, I have a 7wAr old son as well, awaiting genetic testing to see if he is affected as well.
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Re: New England get together?

Postby kdaniele203 » Sat Jun 13, 2015 8:16 pm

I'm in the north east, I have 2 cavernomas one on the brain stem with a recent bleed and another in the frontal lobe, I also have a 7year old son as well, awaiting genetic testing to see if he is affected too.
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