Anyone in Missouri?

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Anyone in Missouri?

Postby mommynkhai » Tue Dec 29, 2015 11:34 pm

Is there anyone on here from Missouri? If so make sure you respond to me.
Posts: 5
Joined: Mon Dec 28, 2015 12:00 am

Re: Anyone in Missouri?

Postby butterflymajic » Fri Apr 29, 2016 4:30 pm

I am in Missouri and my son was just diagnosed. I'm in the KC area. And you?
Posts: 3
Joined: Fri Apr 29, 2016 4:06 pm

Re: Anyone in Missouri?

Postby drslick76 » Mon May 09, 2016 6:24 pm

My son is 4 years old and was recently diagnosed with 2 Cavernous Malformations in the frontal brain. I am looking for families in the Kansas City area as well. We are in the Northland.

Kim Miller
Posts: 1
Joined: Mon May 09, 2016 4:48 pm

Re: Anyone in Missouri?

Postby BB_Momy » Sun Nov 13, 2016 4:17 pm

I have a 5 year old that had an angioma removed from his right frontal lobe. We live in Wichita ks area, I would love for him to meet other kids. Would you guys like to meet some time in the KC area?
Posts: 3
Joined: Thu Apr 14, 2016 1:21 am

Re: Anyone in Missouri?

Postby Elizabeth » Tue Nov 15, 2016 1:25 am

Im to far to meet Los Angeles....and hopefully my kids are not affected, but i would suggest that you try to private message the others in this thread...they might not be checking in here often but still like to meet up. Try a private message or an email and see if they might respond. Best wishes.
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery.
Posts: 1685
Joined: Mon Sep 27, 2010 6:49 pm
Location: Los Angeles

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