Cavernoma in Right putamen

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Cavernoma in Right putamen

Postby Tigerfan » Sat Nov 11, 2017 6:41 pm

Hello- I am a 47 year old female and have had muscle weakness in my right bicep since an ulnar nerve surgery in 2009. Fast forward to 2017 and a shoulder injury shed light on how little muscle is really there. A nerve test of the musculucutaneous nerve showed nerve damage. Checked my left arm and it has weakness in the bicep as well. Hand and elbow doc ordered an MRI of neck and brain and referred me to a neurologist.

Like any curious person, I read my MRI results and it showed a 9 x 8 x 8 mm cavernous malformation.
From what I have read, it seems logical my issues could be a result of the cavernoma. Anyone else have symptoms present this way? I have also had trouble finding my words for years and explained it away due to stress.

Anxiously awaiting my neurologist appointment on Thursday. Scared to death of what the future holds.........
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Re: Cavernoma in Right putamen

Postby Connie Lee » Sat Nov 25, 2017 9:16 pm

Hi Tigerfan,
Sorry we're just seeing this. What did your neurosurgeon say?
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
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Re: Cavernoma in Right putamen

Postby Tigerfan » Thu Nov 30, 2017 4:16 am

Hi Connie Lee-

It was interesting. The neurologist said it wasn't very big and we could look at in a year. He felt my issues in the arms were from injury and is going to see if he could get my brain MRI from about 10 years ago. I was having terrible headaches back then. Hoping to find the records to see if it was visible.

Does waiting a year to have another MRI seem appropriate? I see him again in 3 months. I live in Dallas and have considered sending my MRI report to UT Southwestern Neurology department for a second opinion. Thoughts??
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Re: Cavernoma in Right putamen

Postby Elizabeth » Sat Dec 02, 2017 4:59 pm

I thought I responded to you earlier...sorry...I don't see it here. I had one in the same place, removed for excessive bleeding and progressive deficits. I will come back soon and reply more...I'm in a hurry right now. Yes, get more opinions until you are satisfied with answers. Get expert options and give them all the films you can find...comparisons are really helpful! Good luck, I will be back later. ;)
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
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Re: Cavernoma in Right putamen

Postby Connie Lee » Thu Dec 07, 2017 4:59 am

If you are going to UT Southwestern, it would be good to get an opinion from Dr. Hunt Batjer in the neurosurgery department. He's an expert in cavernous malformations and could guide you toward the right neurologist to help with your symptoms.
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
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Re: Cavernoma in Right putamen

Postby habibii_sala » Thu Dec 21, 2017 2:07 am

Through my experience, I think it could be related. I just received surgery and my lesion is out, however, I was experiencing numbness/weakness/aches/heaviness/discomfort in my limbs that lasted on average of 4 days, but never completely goes away. Then that feeling would rotate to another limb. Right before my surgery, it was in both my arm and leg at the same time.

My cavernoma was on left frontal lobe, and initial measurement of 2.3mm (it changed but with the chaos of emergency craniotomy prep, they never reported to me what the change was). Logically speaking, because it was on my left, its supposed to only affect the right side of my body... Realistically, all limbs were victims lol and it puzzled doctors. So just be aware of that.

Although it's small I wouldn't rule it out. Keep an eye on it and I think a year is a really long time for an MRI, since they just found it this year. I ended up getting surgery before my scheduled 3 month MRI appointment. I should have gotten even earlier except I never reported my new symptoms lol (young and dumb... I learned the hard way.. Annoy your doctors, don't ever be embarrassed to report any concerns/symptoms).

Best of luck! :D
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