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Introduction

PostPosted: Wed Jan 02, 2019 8:24 pm
by kdahlem
Hello everyone and Happy New Year!

I would like to introduce myself - I am Kristen Dahlem and I am personally affected by CCM. I was diagnosed about 15 years ago as a young adult and am living with my brain lesion that is located near the basal ganglia. I have also been a volunteer with Angioma Alliance for a few years and am happy to announce that as of today I am working as the Clinical Research Specialist for the organization. I am thrilled to be on board to help drive our mission while getting to know you all and supporting cavernous angioma research. I am also a registered nurse and in 2017 became certified as a functional medicine health coach. I live near the beach in NY, love being active, traveling, and living a healthy lifestyle.

I look forward to getting to know you and wish you a happy and healthy 2019! :D

Warmly,
Kristen

Re: Introduction

PostPosted: Sun Jan 06, 2019 10:06 pm
by Michelle2000
Welcome, Kristen!

Re: Introduction

PostPosted: Sat Feb 16, 2019 10:03 pm
by Elizabeth
Welcome,

I also had an angiomas near my basal ganglia. Mine was large, bleeding, and overlapping many areas...it had to go. I'm a nurse too, not working anymore though since my surgery in 2010. Thanks for all that you are doing! Hoping someday, there will be a cure other than brain surgery!!