seeing specialist for 2nd opinion - having weird symptoms

Discussions of issues related to living with cavernous angiomas

Re: seeing specialist for 2nd opinion - having weird symptom

Postby PattiG » Wed Jun 28, 2017 3:21 pm

I echo Elizabeth and Michelle.
Too many doctors claim symptoms aren't CM-related. The brain is too complex to write off symptoms as unrelated. Whatever happened to common sense? :(
If possible, I'd encourage another opinion.
In my experience w/Stanford and UCSF, neither specialists charge to review your films. :idea:

Take care and best wishes,
Patti
Multiple CMs throughout my brain. I have had 4 bleeds requiring surgery between 1987 and 2010. Locations of craniotomies have been: L. parietal, R. parietal, L. temporal and R. thalamus.
Cavernous Malformations & Central Pain Syndrome: http://support.stroke.org/site/News2?ne ... 1&id=17759
A Day in the Life of CPS @ http://www.youtube.com/watch?v=8ed6hazqNYU&feature=plcp
PattiG
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Joined: Mon Sep 27, 2010 12:38 am
Location: Oregon

Re: seeing specialist for 2nd opinion - having weird symptom

Postby PattiG » Wed Jun 28, 2017 3:33 pm

gardengirl1975 wrote: I also drink ginseng drinks from local Asia Mart - with the root in the bottle - it really helps....when I can remember to get them.....sigh.


Hi gardengirl,
Just wanted to encourage research on ginseng drinks, as it appears on the net to be a blood thinner. :(
So many 'innocent' herbs, OTC and Rx meds (as you unfortunately know) that are potentially dangerous for us.

Best wishes,
Patti
Multiple CMs throughout my brain. I have had 4 bleeds requiring surgery between 1987 and 2010. Locations of craniotomies have been: L. parietal, R. parietal, L. temporal and R. thalamus.
Cavernous Malformations & Central Pain Syndrome: http://support.stroke.org/site/News2?ne ... 1&id=17759
A Day in the Life of CPS @ http://www.youtube.com/watch?v=8ed6hazqNYU&feature=plcp
PattiG
Moderator
 
Posts: 1072
Joined: Mon Sep 27, 2010 12:38 am
Location: Oregon

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