Member Survey - please participate

Discussions of issues related to living with cavernous angiomas

Member Survey - please participate

Postby Connie Lee » Wed Oct 18, 2017 4:02 pm

Please participate in our 12-question 2017 Member Survey. We want to know what you need and how we're doing. It takes just a few minutes and will help us plan the future of Angioma Alliance. Thank you!

You can find the survey at https://www.surveymonkey.com/r/AAMemberSurvey2017
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
Founder, Angioma Alliance
 
Posts: 413
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

Re: Member Survey - please participate

Postby uclapeterg » Fri Nov 10, 2017 5:33 am

Survey is closed.
Diagnosed with multiple Cystic Cavernous Hemangiomas in 2001. Had 3 surgeries since then, most recent in 2013. All at UCLA. Have recurring bleeds and ongoing cyst growth and shrinkage causing multiple symptoms.
uclapeterg
 
Posts: 7
Joined: Fri Jul 31, 2015 2:02 am
Location: Los Angeles CA


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