by MojaveSun19 » Mon Dec 04, 2017 12:40 pm
Hey Aryanne,
Sometimes I think we are all quick to point to our angiomas as the culprit for any unexplainable mallady. If I had too much fatigue or a headache, I would immediately suspect my angiomas. I'm sure they are not innocent in my physical issues, but I've learned to work through all the symptoms of other basic problems before I blame my 30+ angiomas. I had recently realized that most of my headaches were actually from dehydration and a crummy pillow. So when I fixed that I had less headaches and I just felt less angry about my physical issues overall.
I love working out, and yes I get nausea, dizziness, and evening long headaches too. But so do many people who don't have angiomas. I don't know what your nutritional regimen is like, but those could very well be the symptoms of dehydration, overexertion of weak core muscles, or food sensitives exacerbated by exercise. I have had to go to physical therapy to strengthen the weak muscles in my core because I had constant left flank pain and nausea for years. After neuro tests, CT scans, MRIs, gastro tests, ultrasounds, OB-GYN tests, they found nothing... and physical therapy was the last place to go. It has worked miracles. Nothing to do with my angiomas. It also has fixed my balance issues that I used to think were due to an angioma in my cerebellum.
Ultimately, I have no idea what your general health is like, and I'd be surprised if you found a neuro that could give you a straight answer about whether your angioma actually causes your issues. But it might make you feel better to try simple routes, like diet changes and different exercises, before blaming the angiomas and feeling like you have to mitigate everything around them.
Fatigue is probably going to be the biggest issue, and that is something that we can all improve on with better nutrition. I've found that when I'm symptomatic, my brain wants protein, fat, cholesterol, and simple sugars. And those are also good things for a workout even if you don't have an angioma. My brain is the first thing to suffer when I work out, so I feed it what it needs and I drink lots of electrolytes. I've found watered down blueberry juice to be the best; $5 a bottle a Trader Joe's.
Do you keep your electrolyte and water intake up when you workout? How is your form? I didn't know how bad my form was until I got lucky and found a personal trainer. He's just a free student intern at the school that I work for but he has helped immensely. But my bad form added to muscle pain, which then only gave me worse form or I'd compensate, and caused my core to weaken more, then led to nausea. It took me years to make these connections. And I just wanted to keep blaming my angiomas, hell I even have one hanging out in my liver that I thought could have some culpability.
You can go to your doctor and talk to her, and see what she says. But this is such a far off issue from the neurological system that most doctors will just give some general medical platitude because...they don't know. I'm of the camp that finds neuros to be mostly useless except for dispensing pills and ordering scans, so that's my bias. Maybe that's just where I lived.
It might be good to keep a journal of what you eat, what exercises you do, how much you drink, and list out your overall general feelings for that day. You might find a food allergy in there that you never imagined you had, and the exercise makes it worse.