My Wife has a CM, feeling hopeless

Discussions of issues related to living with cavernous angiomas

My Wife has a CM, feeling hopeless

Postby hausmusic » Wed Jul 31, 2019 11:18 pm

Hello all,

I really don't know where to start. MY wife has been living with her CM for the better part of 11 years now, with multiple bleeds / ooze events. The CM is in the left side of her brain, she is too high functioning for many doctors / neurosurgeons to consider her CM operable. The CM has left her with right side motor skill / grip weakness, issues with her speech (mixing up words / difficulty stringing together complex sentence,) and near constant migraines. I try to encourage her to live more in the moment and accept herself as she is now, but I know these deficits must be brutal as she is quite smart and in an intense working environment with a lot of high demands needing quick decision making.

She has been feeling very hopeless about her situation and worrying about deteriorating. We have been toying with a second opinion from a center that seems to be well regarded in this forum located in AZ/Chicago. What ways are best for me to support her? How do you fight the loneliness and feeling like things will never get better and only get worse?
hausmusic
 
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