Large vessels

Discussions of issues related to living with cavernous angiomas

Large vessels

Postby rhock1212 » Thu Mar 28, 2013 8:12 pm

I have been dx with 4 CCM four yrs ago this coming April at age 27 with also a large close to brainstem hemorrhage . I was luck to be left with only internal side effects (SOB, fatigue, sleep issues, fast heart and weight gain) so to the outside I look healthy which can be a challenge also. I had my first angio done couple days ago and I have a follow up with MD next week but he mentioned something about things looked good but I have large vessels and would need to make sure I stay hydrates especially during hikes and such. He said he would talk more about it when we had my next appointment, but is this just part of Cavernous malformation? Thanks Ray
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