Congressional Roundtable on accelerating cures

Discussions of issues related to living with cavernous angiomas

Congressional Roundtable on accelerating cures

Postby Connie Lee » Mon May 12, 2014 4:21 pm

If you have a couple of hours to spend, this is a US House of Representatives hearing held last week to discuss accelerating cures for all diseases. The Roundtable brought together leaders from every domain involved in research: government agencies, patient groups, Congress, industry, philanthropy, and academia:

https://www.youtube.com/watch?v=Fr4Re7sfDzE

It's a scary and honest look at what we're up against.
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
Founder, Angioma Alliance
 
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