Creating a book for our kids

Discussions of issues related to living with cavernous angiomas

Creating a book for our kids

Postby Connie Lee » Thu Jul 24, 2014 3:11 pm

We're getting ready to create a children's book for our affected kids (and unaffected siblings)! The kid's book will be structured as a series of personal stories of children a little older than our target audience of 8-12, written as first person accounts by Rebecca Jones, a well known children's author. In September, Rebecca would like to interview kids in the 11-14 year old age group who are affected, along with a parent who can answer follow-up questions. We're looking for a diverse group - boys and girls; spine, brainstem, and higher brain; single lesion and multiple lesions; asymptomatic, mildly affected, and more seriously affected. If you have a child in this age range who would be willing to be interviewed and included, please contact me. Let them know we'll be using only their first name. I can't guarantee we'll use everyone's story for the booklet because we may wind up with a few too many, but it would be better for us to have too many to choose from than too few. Please email me at if you can help. Thanks!
Connie Lee
President and CEO, Angioma Alliance
On this journey since 2000, when my infant daughter was diagnosed.
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Connie Lee
Founder, Angioma Alliance
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Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

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