Upcoming events around the US

Discussions of issues related to living with cavernous angiomas

Upcoming events around the US

Postby Connie Lee » Wed Aug 30, 2017 1:07 pm

We have many Angioma Alliance events coming throughout the fall and would love to see you at one of them. You can find info on our website at http://angioma.org/pages.aspx?content=94.

If you don't see an event near you, please feel free to reach out to Stephanie Alband at salband@angioma.org about partnering with other Angioma Alliance members to plan an event of your own.
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
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Re: Upcoming events around the US

Postby Elizabeth » Sun Sep 03, 2017 3:13 pm

I hope I can make it to the CA events this year!!! Biking for brains??? Oh my, not for me. I tried to teach my son to ride a bike a few years ago....I kept falling off. I think people were wondering WHO was learning to ride the bike, the kid or the adult...woops. I could use one of those cool trikes Julia has.
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
Elizabeth
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Location: Los Angeles


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