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Health Stories Project Blog - Four Generations of CMs

PostPosted: Wed Apr 18, 2018 1:16 pm
by PattiG
While browsing for sites welcoming patient stories, I was thrilled to find this!
https://healthstoriesproject.com/four-g ... -angiomas/

Happy reading and writing! :)

Best wishes,
Patti

Re: Health Stories Project Blog - Four Generations of CMs

PostPosted: Tue May 29, 2018 12:08 pm
by Connie Lee
Thanks, Patti. I just wanted to follow-up with an update on the story. Julie DeMichiel has since joined our Board of Directors. She hosts a wine tasting every September in Torrington CT that benefits Angioma Alliance. Julie's mother passed away a few years ago. Just this year, Aria, the baby, had brain surgery for a hemorrhaging lesion in the temporal lobe. She is doing well. Finally, the family has welcomed another baby, a little boy, who does not have CCM.