Brainstem Cavernous Angioma Quality of Life Research

Discussions of issues related to living with cavernous angiomas

Brainstem Cavernous Angioma Quality of Life Research

Postby Connie Lee » Fri Jun 15, 2018 1:48 am

Mayo Clinic, an Angioma Alliance recognized CCM Center of Excellence, is conducting a survey of adult patients with brainstem lesions (or who have had a brainstem lesion removed) to understand the quality of life issues that impact our members. Please consider participating!

More information is on our site at

Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit
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Connie Lee
Founder, Angioma Alliance
Posts: 440
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

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