Nauseous and consistent vomiting

Discussions of issues related to living with cavernous angiomas

Nauseous and consistent vomiting

Postby Carterst4 » Sun Dec 16, 2018 12:16 am

My husband was diagnosed with CCM in the pons of his brainstem 4 years ago and the journey has been challenging to say the least. We often feel like we never move forward, but are consistent in a cyclical pattern of additional concerns and to no avail, cannot find relief. We have been to Mayo, Cleveland Clinic, U of M, U of Chicago, Barrow, Walter Reed and our local hospital.

My husband now is vomiting almost daily and has lost close to 20 pounds the past year. Is this normal the vomiting?

We are at a loss and need to get answers. Multiple neurosurgeons have advised against surgery and his lesion will seep/microbleeds. There have been a few substantial bleeds resulting in deficits until the fluids were reabsorbed. He was prescribed albenza to help with the reabsorption however due to the type of steroid it is not something that he can take for a long time. Presently he is taking migraine medication Lyrica and trying alleviate part of his issues with pain management..

Does anyone have any advice on what to do or where to go next?
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Re: Nauseous and consistent vomiting

Postby tbrain888 » Sun Dec 16, 2018 6:32 am

I have only just begun my pons bleed journey but my thoughts are with you guys and I hope someone with experience will be able to help you on here. When was the last mri and consultations you had for surgery?
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Re: Nauseous and consistent vomiting

Postby PattiG » Thu Dec 20, 2018 2:48 pm

Hi Carterst4,
20 lb. wt. loss is extreme!
Have you mentioned the vomiting and wt. loss to the specialists, or to his neuro? If not, please do.
Take care & best wishes,
Patti
Multiple CMs throughout my brain. I have had 4 bleeds requiring surgery between 1987 and 2010. Locations of craniotomies have been: L. parietal, R. parietal, L. temporal and R. thalamus.
A Central Pain Syndrome Survivor's Perspective http://strokeconnection.strokeassociati ... rspective/
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