CCM-CARE Act of 2019 Introduced

Discussions of issues related to living with cavernous angiomas

CCM-CARE Act of 2019 Introduced

Postby Connie Lee » Thu Jul 11, 2019 9:45 pm

Legislation advocating for increased research and improved care has been introduced in both the US House and Senate! This legislation was written by Angioma Alliance in conjunction with Sen Tom Udall's office.

We need you to call your Congressional offices and let them know how important the legislation is to you. I've created a short video with the information you need to make the call easy at https://www.youtube.com/watch?v=BD7GGI5b9w4

You can also find all the info you need on our website at http://angioma.org/pages.aspx?content=123

Your calls really do make a difference (and are much more effective than email). Please take a few minutes to help change the future. Thank you!
Connie Lee
President and CEO, Angioma Alliance
On this journey since 2000, when my infant daughter was diagnosed.
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
Founder, Angioma Alliance
 
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Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

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