Have you seen this?

Announcements of drug trials and other treatment information

Have you seen this?

Postby vandy » Wed Jun 26, 2013 4:58 pm

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Re: Have you seen this?

Postby Elizabeth » Wed Jun 26, 2013 5:09 pm

Great news, thanks for sharing!!!
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
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Re: Have you seen this?

Postby vandy » Wed Jun 26, 2013 5:14 pm

Yes we had similar articles on this earlier, but this article clearly explains in laymen terms what it means.

from the article: ""Now we hope to have the support necessary to initiate a preliminary clinical study", concludes the researcher."

I can't wait !!

Henk :ugeek:
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Re: Have you seen this?

Postby josh » Wed Jun 26, 2013 7:06 pm

Thanks for sharing, great to see more leads on potential therapies here! Fingers X'd here.
Diagnosed at age 35 after brainstem hemorrhage in December 2010."1.0 x 0.4 x 0.9 cm focal lesion in the anterior aspect of the medulla most consistent with cavernous angioma." MRI in March 2012 shows growth and symptoms worsening (sigh). MRI in Sep 2012 maybe shrinking! New bleed in 2014,CM bigger,recovering OK *meh*
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The Chronicles of a Rebel Brain http://brainrebel.blogspot.com/
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Re: Have you seen this?

Postby Connie Lee » Sat Jun 29, 2013 3:19 pm

This article is great news. Researchers for a variety of illnesses are looking into this pathway for drug development so there is a good chance there will one day be a medication available that utilizes this science. Right now, there are only drugs under development, not anything on the market, so the promise of this research won't be immediately realized. There won't be clinical trials just yet.
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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