The search for meds to treat cavernous angiomas

Announcements of drug trials and other treatment information

Re: The search for meds to treat cavernous angiomas

Postby kirkmc » Thu Sep 20, 2012 9:22 am

Reassuring, isn't it? :-)
Two brainstem CAs in the pons. Big Bleed in July 2005, previous, undiagnosed bleeds in 1982 and 1987, and several smaller bleeds in the past few years. I live in a town in the French Alps. http://www.mcelhearn.com
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kirkmc
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Re: The search for meds to treat cavernous angiomas

Postby penguru » Wed Sep 02, 2015 12:30 am

I am replying to ask if the use of statins has developed further as a possible treatment to help prevent anginoma or cavernomas. If you saw my post a few days ago, I descibed my 3 bleeds over a year and a half. I have mild headaches still and left eye impairment. I took 40 mg Lipitor per day before the bleeds and 20 mg now.
Thanks for your help!
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Re: The search for meds to treat cavernous angiomas

Postby Connie Lee » Fri Sep 04, 2015 4:33 pm

Hi penguru,
It looks as though statins may be the first of a number of medications going into drug trials soon. One issue is one of dosage - it's not clear that 20 or 40 mg actually has any effect on cavernous angioma. That would be one of the goals of the trial - to see if there is a tolerable dose that has an effect.
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
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