gamma knive surgery

Concerns specific to those in the United Kingdom

gamma knive surgery

Postby scottishyorkshire » Tue Apr 01, 2014 3:10 pm

Hi

I have just recently suffered a second bleed from my brainstem cavernoma and i'm seeking info on gamma knive surgery and also what if i'm classed as disabled to claim disability?

thanks
scottishyorkshire
 
Posts: 1
Joined: Tue Apr 01, 2014 3:04 pm

Re: gamma knive surgery

Postby tallpaul » Wed Apr 02, 2014 2:12 pm

scottishyorkshire wrote:I have just recently suffered a second bleed from my brainstem cavernoma and i'm seeking info on gamma knive surgery

As I understand it they burn the site of the cavernoma with a carefully target beam of gamma rays. By moving the beam around so that only the cavernoma site stays in the beam all the time they attempt to minimise the damage to other areas of the brain. Of course the impact of this on the rest of the brain varies depending on the distance from the site.

As for efficacy it seems to me that the jury is still out on gamma knife. It's fairly popular in the UK but I gather that it's not used in France (for cavernoma, it is for other things). In the USA I know it is used sometimes.

Here in the UK doctors seem to be divided. For example at the Cambridge Caverhub the neurosurgeon who spoke to us, when asked about gamma knife, replied in very guarded language but left me with the distinct impression that he wasn't at all convinced of the long term benefits of using it.

scottishyorkshire wrote:and also what if i'm classed as disabled to claim disability?

Hard to answer that one easily as it depends on what disabilities you have and who you're asking as (for example) the qualifying criteria for the Disabled Railcard are rather different that those required to get benefits.
Paul Oldham, cavernoma in pons, bled 2002
Webmaster of Cavernoma Alliance UK
User avatar
tallpaul
Site Admin
 
Posts: 7
Joined: Sat Sep 25, 2010 9:46 am
Location: Cambridge, England

Re: gamma knive surgery

Postby vandy » Wed Apr 02, 2014 2:14 pm

Hi scottishyorkshire,

Welcome to the forum and your question regarding the gamma-knife procedure.

As far as the conversations have been going on, I have found that most opinions on Gamma-Knife to treat brain stem lesions is that it is not recommended. You can contact some specialists and ask for other opinions, but that is what is out there.

In the UK you have a very good group to support you regarding this and your question about disability. I am on disability in Canada and it work differently in every country.

Visit: http://www.cavernoma.org.uk/home.html and contact Ian and he will help you further.

Best Wishes,

Henk :ugeek:
User avatar
vandy
 
Posts: 1040
Joined: Thu Sep 30, 2010 10:02 pm


Return to United Kingdom

Who is online

Users browsing this forum: No registered users and 2 guests