Can anyone recommend the "go-to" Neurosurgeon in Southern CA

Discussions about the illness, treatments, doctors, etc.

Can anyone recommend the "go-to" Neurosurgeon in Southern CA

Postby Mark » Fri May 11, 2018 7:28 pm

Hi there.

I'm new to this forum and new to the world of CCMs. My genetic testing has revealed a positive result for CCM2. I just had an MRI and there are 4 legions in my brain. Can anyone recommend the best Neurosurgeon in Los Angeles to consult with regarding next steps? I am asymptomatic so there is no imminent rush, but I would like to get the ball rolling. The radiology report reads like an alien language!

Any help you can provide will be greatly appreciated.


Posts: 1
Joined: Tue May 01, 2018 12:09 pm

Re: Can anyone recommend the "go-to" Neurosurgeon in Souther

Postby Elizabeth » Sat May 19, 2018 4:14 pm


I live in SoCal and didn't have luck with any knowledgeable doctors here. Dr. Martin was at UCLA, and he was considered to be pretty good, but he wasn't a good fit for me...Hes moved though anyways. I'm not sure if there's anyone new or good at UCLA now. You can look for angiomas experts at the AA centers for excellence. I ended up going to phoenix to see Dr. Spetzler, but hes retired now. If I had issues now I would likely go to Dr. Spetzlers replacement...Dr. Lawton. Sorry I'm not more helpful.
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery.
Posts: 1685
Joined: Mon Sep 27, 2010 6:49 pm
Location: Los Angeles

Re: Can anyone recommend the "go-to" Neurosurgeon in Souther

Postby Bek10 » Wed Sep 12, 2018 7:48 pm

I can certainly recommend a surgeon in San Diego.
Dr. Rene Sanchez Mejia is a brilliant surgeon with extensive experience in CMs.
He recently removed a CM from my wife's left temporal lobe and we couldn't be happier.
He is a kind and caring physician as well.
He works out of the Neurosurgery Medical Clinic in San Diego.
Might be worth a drive.

Good luck.
Posts: 1
Joined: Thu Apr 26, 2018 9:40 pm

Re: Can anyone recommend the "go-to" Neurosurgeon in Souther

Postby Carterst4 » Sun Dec 09, 2018 9:00 pm


My husband had a brainstem CCM, we have been to multiple neurosurgeons, one of our favorite was at University of Michigan, who relocated to UCSF, his name is Dr. Shawn Hervey Jumper. I cannot express how professional, caring and meticulous he was during the time he saw my husband. We actually considering keeping him as the Dr for my husband, however, living in Michigan makes that quite challenging.
Posts: 13
Joined: Tue Oct 11, 2016 2:04 pm

Re: Can anyone recommend the "go-to" Neurosurgeon in Souther

Postby Connie Lee » Thu Dec 20, 2018 4:34 pm

Dr. Wang at UCLA is developing a special interest in CCM. He is Dr. Martin's replacement.
Connie Lee
President and CEO, Angioma Alliance
On this journey since 2000, when my infant daughter was diagnosed.
To support Angioma Alliance, visit
User avatar
Connie Lee
Founder, Angioma Alliance
Posts: 463
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

Return to Questions and Information About Cavernous Angioma

Who is online

Users browsing this forum: No registered users and 4 guests